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Just found out I have mycobacterium abscessus!MAC & Bronchiectasis | Last Active: Apr 12 6:29pm | Replies (118)
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Replies to "@jammer These diagnoses can be really frightening at first. In my journey with bronchiectasis, MAC &..."
I too was diagnosed with m. Abscessus, sub species abscessus 2 years ago. Last year I had 11 month treatment started with 2x day oral Linezolid, 2x day iv infusions of amikacyn, & tigecycline. Linezolid made me very sick and was stopped after 1 month. After 5&1/2-6 months amikacyn caused 20% hearing loss and was stopped. Tigecycline continued for 11 months alone, until I got a 2nd opinion at Mayo. Infection had worsened after 11 month treatment. Mayo dr took me off iv Tigecycline for 3 months to allow my body to heal, lab work to improve & gain wt. just started Recarbrio iv infusions 4x daily & 875 mg amoxicillin 2x daily. In 1 week starting Nuzyra, next week Arikayce & another wk clofaximine. Hoping I can tolerate this treatment resulting in a better outcome.
thank you so much for the info