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Axonal Sensorimotor Polyneuropathy: Looking for someone to relate
Neuropathy | Last Active: Jun 27, 2023 | Replies (27)Comment receiving replies
Hey @jimhd
Thank you for taking the time to read and respond to my message. Truly means a lot. Reading about your spinal cord implant is very interesting. I take oxycodone three times per day. This provides the most pain relief for me, but over the past week, I’ve developed an itchy rash situation side effect...not fun. Hopefully switching to hydrocodone today. I also take the highest dosage of gabapentin five times per day. I refer to it as “my best friend“. In addition to these, I take a handful of other medications that are supposed to relieve nerve pain. Like you mentioned, it’s hard to say what works and what doesn’t due to the amount of medications taken at once.
This Friday, I have an appointment for a light therapy treatment. My therapist brought it up so I’m going to give it a try even though I’m a bit skeptical. I’ll let you know if it ends up being a successful treatment.
Wish you the absolute best!
Laura
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@laurask
I take a variety of meds for different kinds of pain. For arthritis, I take Meloxicam and acetaminophen, and topical Voltaren. For neuropathy pain, I take ms contin and imipramine. I also take Clonazepam for anxiety. I fell 12' several years ago and fractured two vertebrae and broke an elbow. It took a couple of years to be pain free, but I keep oxycodone and a muscle relaxer for when I do too much lifting, but I rarely take them. Of course, the spinal cord stimulator is an important part of my pain management. I don't tolerate hydrocodone. It really causes stomach pain. Gabapentin didn't do it for me. I tried that several years ago and I think it affected my cognition. My wife notices that kind of thing when I don't, but sometimes she accuses me of being out of it when I actually feel pretty alert. My therapist pointed out to me that the ms contin can definitely dull the brain. I think I take such a low dose and have taken it for so long that my brain and body are used to it. I take it in the morning and at bedtime. At night, I'm all for sedation.
The pain in my feet has been changing over the past few months. It's spread to include my whole foot and has moved up to my ankles. And now it's changed so that socks are painful, so I wear open sandals with extra insole cushioning and no socks. I still can't walk barefoot because of the pain. It's a strange feeling when my feet are numb but it really hurts to step on something or bump something. I don't feel change of temperature, as in not feeling that the tile floor is cold, or in the shower not feeling really hot water hitting them. I don't know if other people feel the same way. When a doctor put a large needle into the muscle on the top of my feet close to my toes, I didn't feel it at all. Some of these things are worrisome to diabetics, but I'm not diabetic. I'm thankful that I don't have that to add to my list.
Time for sleep.
Jim