← Return to Axonal Sensorimotor Polyneuropathy: Looking for someone to relate

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@laurask Hi Laura, and welcome to Connect. I really have no knowledge about what you are going through but I wanted to welcome you and express my sympathy that you can no longer do things you love. That's difficult at any age, but more so when you are young as you are.
You have some responses here that are more knowledgeable than what I could offer and also some suggestions. I too wonder what led to your diagnosis, and what is the prognosis?

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Replies to "@laurask Hi Laura, and welcome to Connect. I really have no knowledge about what you are..."

Hi! I truly appreciate your kindness and response. To this day, we still have no idea what caused my illness. My thiamine level was undetectable which points to malnutrition/chronic alcoholism (I rarely drink) or possibly a genetic mutation of some sort. Duke concluded that it is not a genetic issue. I am on the waiting list of neurology at the Mayo Clinic & praying that we find this missing link. I have had a handful of EMG tests. Due to those results, my prognosis is fair for partial recovery during the next two years. I constantly work with my hands and do everything I can to “wake them up”. My walking and stability has greatly improved as long as I’m wearing tennis shoes. Without them, I am not able to put my ankle to the floor due to tightness in my Achilles tendon. For now, I will work on responding to these messages. Thank you again for reaching out. I wish you all of the best!