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DiscussionAxonal Sensorimotor Polyneuropathy: Looking for someone to relate
Neuropathy | Last Active: Jun 27, 2023 | Replies (27)Comment receiving replies
Replies to "@laurask SSSSAP - that's a mouthful. I have idiopathic small fiber polyneuropathy that started with tingling..."
Hey @jimhd
Thank you for taking the time to read and respond to my message. Truly means a lot. Reading about your spinal cord implant is very interesting. I take oxycodone three times per day. This provides the most pain relief for me, but over the past week, I’ve developed an itchy rash situation side effect...not fun. Hopefully switching to hydrocodone today. I also take the highest dosage of gabapentin five times per day. I refer to it as “my best friend“. In addition to these, I take a handful of other medications that are supposed to relieve nerve pain. Like you mentioned, it’s hard to say what works and what doesn’t due to the amount of medications taken at once.
This Friday, I have an appointment for a light therapy treatment. My therapist brought it up so I’m going to give it a try even though I’m a bit skeptical. I’ll let you know if it ends up being a successful treatment.
Wish you the absolute best!
Laura