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Supporting those in hospital/care facilities with visitor restrictions
Post-COVID Recovery & COVID-19 | Last Active: Mar 24, 2020 | Replies (17)Comment receiving replies
@ruttgerbay I completely understand your outrage, call for help and anxiety. It's scares the cr&p out of us when we can't be there for our loved one. It makes an already terrifying experience like CAR-T therapy become even more anxiety-ridden. Not what you need as you try to be the calm one and the pillar and the rudder for your wife.
I'm glad that it was quickly explained to you that you can accompany your wife.
Effective Monday, March 23, outpatient clinic patients may have one individual accompany them, with consideration for special exceptions determined by patient care teams.
Here is a link to all the details of the Updated visitor policy: Mayo Clinic limits number of visitors during COVID-19 response https://newsnetwork.mayoclinic.org/discussion/updated-visitor-policy-mayo-clinic-limits-number-of-visitors-during-covid-19-response/
Are you in the CAR-T unit now? How are you doing? How is your wife?
Replies to "@ruttgerbay I completely understand your outrage, call for help and anxiety. It's scares the cr&p out..."
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Just a thought: I'm probably safer than most Mayo staff. For the past four months, the only place I've been has been home, at Mayo facilities and once a week to the grocery store, wearing an N95 mask due to her being in neutropenia. That said, well, I can probably pass the "door test" at Rochester.
And thanks for asking about my wife. Fairly tough shape, tired, run down, barely eating. Looking forward to the CAR-T and not afraid of being sequestered in the Gift of Life House, in that she's had a lot of practice since this ride began last June. We go to Roch tomorrow for a couple of tests, Thursday a PET scan followed by several consultations with oncologist, social worker, pharmacist, and a couple of others. Friday she starts the pre-infusion chemo. Then the infusion... and apparently the separation should she have any of the likely complications.
How am I doing? I'm used to be isolated. so that's no big deal. Other than that, I'm frightened about the outcome of the CAR-T (hey, we've been married 57 years and don't want it to end right now), frustrated by the pending separation, but thankful as heck that we have three very caring and helpful children who are trying to help their mom and dad through this. But basically scarred because everything important is out of my control and I feel helpless. Helpless but not totally hopeless.