Well, Mother Mayo just did it...it instituted draconian measures. No one but the patient gets through their doors. Whether your loved one is having an outpatient procedure (line surgically placed or CART-T infusion --with the complications that often follow within an hour of the infusion) or admitted to the hospital due to the extreme complications that can follow CAR-T, they are on their own.

As far as the caregiver? Tough. You too are on your own ... to wonder, wander and worry.

While I realize there are many ways one can support the loved one from a distance, who can support the caregiver? It has been a tough 11 months getting to this point, then, at the most critical time for both us us, the caregiver is ripped away to become a slave to a phone call from a busy nursing staff.

After 11 months, I have nothing left ..... and what was left has been torn away.

My plea is HELP!