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Lyrica - Looking for Patient Experiences

Neuropathy | Last Active: May 14, 2020 | Replies (64)

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@dckuke

Have neurologists helped with your peripheral neuropathy? I have neuropathy toes to thighs and in my hands and get by on Lyrica and Tramadol. A pain management doctor could only offer surgical implants to help with the legs and tested a pain med that I may have to resort to Nucynta (strong and expensive. The two neurologists that I saw only verified how bad my case is and suggested the exact same medication as our family doctor, podiatrist and pain management had written for me.

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Replies to "Have neurologists helped with your peripheral neuropathy? I have neuropathy toes to thighs and in my..."

Did they diagnose it with skin fiber biopsies? None have been done for me... No, the neuropathy doctor said it was due to my kidneys leaking calcium. She prescribed another drug which made me sick too; my brother-in-law is a pharmacist and he said not to take things that make me sick.... I checked with a kidney doctor and he said my kidneys are fine. The only thing I can take without being sick is hydrocodone, but I hate taking it.

@dckuke @maryflorida Hi. I have Small Fiber Polyneuropathy, via skin punch biopsy, with a b12 deficiency as my underlying cause. I have taken Lyrica for over a year and have no problems being on it. I've adapted to initial drowsiness and it no longer bothers me. I had been on Gabapentin (bc it was cheaper and easier to get insurance coverage) and Lyrica throughout the past 4 years and finally landed back on Lyrica. My first ever pain reliever was tramadol but, it did nothing. Then, Nucynta until my insurance changed and it was not covered. Very expensive drug! I switched to Norco (Hydrocodone) and continue to use it regularly along with medical marijuana as needed.