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Anyone out there living with stage 4 lung cancer?

Lung Cancer | Last Active: Sep 24, 2023 | Replies (143)

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@merpreb

@janlanderz- Good morning Jan. Some of this is terribly encouraging. I know that when medicine doesn't do what you hope it will that it is terribly discouraging and frustrating and scary. I too have several lesions that have grown and lots of tiny ground-glass nodules.
What does your new oncologist say about what the next step will be for you? Do you like him and have confidence in him?

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Replies to "@janlanderz- Good morning Jan. Some of this is terribly encouraging. I know that when medicine doesn't..."

My oncologist says I will be continuing with the Nivolumab (Opdivo) every 4 weeks .. next infusion is tomorrow and he will decide with the end of May CAT scan what the next step will be.. he thinks may have to have radiation or what he termed as Bad Chemo if the new growing tumor should not behave I guess... .. not sure what he meant by Bad Chemo... eeeccckkk... I have only seen this oncologist twice.. Monday was my second time seeing him.. I am not sure what I think of this oncologist yet... really liked him my first appointment.. seemed real optimistic.. and did not show me the same optimism Monday... I had a list of questions for him that I had typed out...and I think he did not take likely to them.. he made me a whole new appointment with him on March 26th to answer the questions.. one of the questions was asking about my cancer which is PDL-1 less than 1 %... wanted to understand it more... he says I am looking too far into my cancer that the question I am asking is something only a scientist or researcher needs to know... attaching the questions just so you can see the type of questions I asked.. some he answered... like the wine question... lol. but the more complicated ones.. he did not answer...