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Heart Disease: Let’s Talk About the Emotional Side
Heart & Blood Health | Last Active: Oct 1, 2023 | Replies (132)Comment receiving replies
Thank you for responding. Since age 15 you have been dealing with all of this? Unbelievable!! Mostly remarkable that you have found your way through it all. I must say I feel so alone in dealing with this then add COVID 19. What I have learned so far about HCM, I have obstruction with it, so HOCM, is that when present to ED, the doctors ate looking for a diagnosis to fit into their little symptom box snd pull out a familiar diagnosis and send you on your way . Only after my persistence that there is something wrong with me, I am not just hypertensive with anxiety. Stayed away from hospitals for over 26 years when I had my daughter send from January to March I went to ED 4 times before they finally did a Cardiac MRI and gave me the diagnosis of HOCM snd referred me to Mayo Clinic because nobody in the area treated HOCM. What about yourself? Did ypu have local doctors through the years that helped you, treated you? What were your symptoms at age 15, middle age, up to present? Have your symptoms changed over the years? How have you dealt with symptoms all these years, meaning what seems to make them better or worse? Are you doing ok today. Did you ever have the Septum Myectomy surgery? My best to you!
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Angiev18, Yes, I did have, and to some extent still do, have local docs who have treated me to the best of their ability. However, in order to do that they had to defend me from some major labs, some get-rich-quick medicos, and assorted quacks. But when I show them the list of signs and wonders, most of them just sort of turn away to defend themselves. My symptoms at age 15 were chest pain and ankylosing spondilitis (I know now.). Middle age, three heart attacks, heart caths every few months. Now, it is the heavy stuff. Heart failure with recovered Ejection Fraction, organomegaly of every interior organ, cerebrum protein deposits showing transmissible Spongiform Encephalopathy, purpura on eyelids, toes, macular skin, cancers of thyroid, pancreas, prostate, lungs, esophagus. Cracking and breaking up teeth, massive eosinophil, flattened area across bridge of nose, chalaisis of eye socket and face, lower lip swelling, Am i doing ok now? Good question. I am still alive, but I can tell I am weakening rapidly. Lot of RA in hands and legs. Well, that's the heavy stuff. Heart wall thicknesses up to 17-18 MM, well past the 12 mm standard. Cutis laxa. Putting out about 2.5-3.0 G of hepatic protein per 24 hours. Leatherized urinary valve requires catheter 6-8 times per day. Most important, I am a fan of OMIM from Johns hopkins, I read everything I can get from Helsinki Univ. Hospital, Mayo, Boston Amyloidosis. And I tell everyone where they can find the info. Anyway, and I have diabetes 2, and get the good shoes from Priority. And put my books and stuff out there for folks to find and read.