@lisalucier
I am just curious how doctors, supposedly the best, can believe 5+ years without a clue to diagnosis or justifiable treatment is receiving “adequate medical care.” A well adjusted 15-year-old goes from being very active to barely being able to walk or function and in extreme pain and that Mayo Clinic (if that statement did, in fact, come from doctors) how could anyone within your organization condone and make such an irresponsible statement provided they ever had the opportunity. I once called the Rochester facility and was inquiring about a child being admitted to the epilepsy center due to Status Epilepticus. I was promptly informed it was an adult center only which I later found out was incorrect. I doubt you, Mayo employees or anyone would accept that response considering the circumstances.
Jake