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Caregiver Burnout Warning

Caregivers: Dementia | Last Active: Nov 2, 2020 | Replies (42)

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@dbrhdarby

I originally went to my moms PCP in which she finally got the diagnosis of dementia (that took 2 years to finally get that diagnosis). During the course of the two years I had been to many doctors and many emergency rooms, etc. No one was helping me. I cannot even express how frustrating it was during those two years of trying to find help for my mom. So after the diagnosis finally from her PCP, I was then assigned a social worker within the state of Arizona where my mom and I reside. And it is the social worker that told me about financial aid that I could apply for through the state of Arizona (arizona long term care insurance known as ALTCS) for my mom. It was a long and tedious process to see if she was going to get approved for it. You go through both a financial tedious review and a medical review. Many people do not even make it through the process because it can be very frustrating but I stuck with it. I had a great social worker who kept giving me good support advising me to stick with it no matter what. And I'm glad I did it because my mom was approved and all of my hard work paid off. The main thing you have to be is very thorough and detailed when going through the process of trying to get the financial aid. The other important advice I would give if you are going to apply for the financial aid for your loved one is that you get a power of attorney so that you can do the paperwork and the interviews for your loved one. Many people fail at the financial aid because they think that their loved one has to be the one to answer all of the questions etc and someone with dementia cannot handle that of course. I'm sure each state has this type of financial aid help for those who qualify for it. I really hope this information helps others who were in the same situation as I.

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Replies to "I originally went to my moms PCP in which she finally got the diagnosis of dementia..."

Thank you for your comprehensive response. I am sorry to hear things have not gotten easier since the 1990's when I did this for my Mother-in-law or 2008 when I did it for my Mom. You are so right about the power of attorney & I will add that you need to gather ALL of your loved ones financial info - in MN it must cover the last 5 years.

Also, for those of you struggling with this - if your PCP doesn't help, contact your state's Office on Aging (names differ slightly) to locate a social worker to help. If you affiliated with a faith group, they often have help (for the paperwork) available.

Sue