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Caregiver Burnout Warning

Caregivers: Dementia | Last Active: Nov 2, 2020 | Replies (42)

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@erikas

@dbrhdarby Welcome to Mayo Clinic Connect. The process of getting your mother to a higher level of care sounds extremely difficult and stressful for you. It is extremely fortunate that you were eventually able to apply for financial aid for memory care.

It sounds like you have a lot of information to share. @fwentz has also provided members with helpful resources about caretaking for loved ones with dementia.

May I ask how you found out about the financial aid and what organization the aids comes from?

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Replies to "@dbrhdarby Welcome to Mayo Clinic Connect. The process of getting your mother to a higher level..."

I originally went to my moms PCP in which she finally got the diagnosis of dementia (that took 2 years to finally get that diagnosis). During the course of the two years I had been to many doctors and many emergency rooms, etc. No one was helping me. I cannot even express how frustrating it was during those two years of trying to find help for my mom. So after the diagnosis finally from her PCP, I was then assigned a social worker within the state of Arizona where my mom and I reside. And it is the social worker that told me about financial aid that I could apply for through the state of Arizona (arizona long term care insurance known as ALTCS) for my mom. It was a long and tedious process to see if she was going to get approved for it. You go through both a financial tedious review and a medical review. Many people do not even make it through the process because it can be very frustrating but I stuck with it. I had a great social worker who kept giving me good support advising me to stick with it no matter what. And I'm glad I did it because my mom was approved and all of my hard work paid off. The main thing you have to be is very thorough and detailed when going through the process of trying to get the financial aid. The other important advice I would give if you are going to apply for the financial aid for your loved one is that you get a power of attorney so that you can do the paperwork and the interviews for your loved one. Many people fail at the financial aid because they think that their loved one has to be the one to answer all of the questions etc and someone with dementia cannot handle that of course. I'm sure each state has this type of financial aid help for those who qualify for it. I really hope this information helps others who were in the same situation as I.