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COVID-19 Coronavirus and Lung Health: What can you do?
Post-COVID Recovery & COVID-19 | Last Active: May 10, 2020 | Replies (297)Comment receiving replies
Thanks @merpreb Merry. I've been trying to get the Lyme and/or other mysteries figured out since last May when I returned from Costa Rica . I now believe I was most likely infected in US, October 2018 when I had a strange round rash on my elbow (no bullseye), shortly after got diagnosed with Frozen Shoulder in same arm and was a grueling journey in itself all of last year with those pains/limitations but on top of it other strange symptoms began: pressure headache, neck-ache, hair loss, tender gland near my ear/throat same side as arm, then in late winter of last year in Costa Rica my other arm began to hurt, I had sore quads (more in one same side as frozen shoulder), weight loss, then got weird pulse like twitches that haven't gone away (were worse May until Sept) now lessened a bit. Through all of this and possibly connected, my sleep has been very poor/disturbed. I assume in part due to pains and pulse like twitches so I never feel well rested. Rheumatologist doesn't think it's RA, Lupus or Fibro- not enough pain points, no swelling or red joints, etc. but man I'm not the body or self I used to be. Hoping that is not my forever normal. Getting Igenex test tomorrow, one band shy of CDC positive for Lyme on a different test.
Replies to "Thanks @merpreb Merry. I've been trying to get the Lyme and/or other mysteries figured out since..."
@aeg73- Good morning. I'm so glad that you are seeing a rheumatologist. Have you been given any antibiotics for this? It does sound as if your symptoms are in line with a lot of what I have read about Lyme? I've had the bullseye and I've had just a rash. I've had fevers and aches and pains like I was hit by a truck. All of my treatments have been immediate. There is another group dealing with Tick-borne illnesses. I'm hoping that you might see some light in some of these discussions. Please let me know how your further testing works out.
https://connect.mayoclinic.org/discussion/tick-borne-illness-with-misdiagnosis-lone-star-tick-bite/?pg=1#comment-373864
@aeg73 Girl! I read your description of symptoms And couldn’t believe how many I share in common with you. I have Bronchiectasis, and I have m. Abscessus colonized in my sinuses and lungs, along with an ever growing list of various fungi & bacteria. I was diagnosed in 2015 following multiple pneumonias.
If it’s any help to you, I’ve been able to keep infections to about one per year since by daily use of an antibiotic and anti-inflammatory through my Navage nasal rinse device, as well as daily airway clearance using the vest, nebulizer with 7% saline and postural drainage in combination, as well as exercise. I still teach full time.
Like you I have also had the mysterious red ring of small bumps around my elbow, that came and went, they biopsied it and found nothing so called it “granuloma annulare”, the frozen shoulder, (always) neck problems, and now the pulsating muscle twitching/ spasms in my ribs on my sides and in my back non-stop for 1 month! The twitches are certainly not life threatening, and don’t keep me from sleeping, but MAN it gets old, and i have to think it’s a message from my body.
I would add gut issues, I experience at least 6 bad bouts of “gastroenteritis” a year. I started taking at least a Tbsp. of Miralax daily to keep things “moving”, and that barely does it.
- BTW Another patient commented she had the muscle twitches, and they found she had low magnesium. Praying for you and us all, Brenda.
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@aeg73 so you are not yet fully sure that you have Lyme but things point to that, correct? If it does turn out to be Lyme how do they treat it? From what I know the earlier treatment is started the better the results. My niece has Lyme, I think once you have it it is not cured but can be in remission. She does have occasional days when she does not feel well but overall she is fine. She has a daughter, works, and lives a full life. I hope you can get a definite diagnosis soon and move forward with treatment. I hope you will keep us up to date.
@roseofonegarden I’m happy for you that you do not have symptoms. Take precautions and stay healthy.
JK