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Anyone have neuroendocrine tumor (NETs) of the breast?

Neuroendocrine Tumors (NETs) | Last Active: Jan 6 3:30pm | Replies (48)
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@hopeful33250

Hello @trixie1313,

I know that we have posted before and yes NETs in the breast are very rare. I have had three surgeries for NETs, however, they have all been in the GI tract which is more typical for NETs. Just wondering, have you had any symptoms of carcinoid syndrome (flushing of the face, diarrhea, rash, etc.)? Have you taken any treatment just as monthly injections of Octreotide?

You might find some helpful information at the Carcinoid Foundation website. Here is the link,
https://www.carcinoid.org/for-patients/general-information/a-review-of-carcinoid-cancer/
How are you feeling now?

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Replies to "Hello @trixie1313, I know that we have posted before and yes NETs in the breast are..."
trixie1313 | @trixie1313 | Feb 26, 2020

@hopeful33250
Wow - what a great article and information. No, I didn't know about octreotride. I do have itching and rash. So far, the oncologists feel wait and watch along with aromatase inhibitors as well as every 6-month PET scans. I will ask now about octreoscan vs. PET scan. Thank you so much for this information...it's a quandary as starting in the breast is quite rare. I feel confident in my care so far and physically am feeling pretty good.

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