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Anyone have neuroendocrine tumor (NETs) of the breast?
Neuroendocrine Tumors (NETs) | Last Active: Jan 6 3:30pm | Replies (48)Comment receiving replies
@trixie1313 thanks for clarifying. I corrected the typo in the title. Now to find other members who have breast NETs to connect you with. I'll do my best.
So you have 2 DIFFERENT kinds of breast cancer in the same breast! What are the chances of that? Do you have any spread (mets) beyond the the breast?
Replies to "@trixie1313 thanks for clarifying. I corrected the typo in the title. Now to find other members..."
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@colleenyoung
Unfortunately, 3/7 nodes were cancerous with one eroding, or metastatic, into the lymph nodes (from the first tumor). The second tumor was poorly differentiated carcinoma consistent with breast primary consistent with neuroendocrine differentiation. TheSecondOpinion.org Stanford oncologist felt I should be treated with oat cell ca treatment, however, after a second tumor board at my facility and my oncologist, it was felt to wait and watch with PET scans every 6 months. So far, so good - two PET scans have been clear and two mammograms as well have been. There is very little that I can find with NET originating in breast - it usually stars elsewhere in the body and that is why I am curious if there are any other patients with it originating in the breast.