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Anyone have neuroendocrine tumor (NETs) of the breast?

Neuroendocrine Tumors (NETs) | Last Active: Jan 6 3:30pm | Replies (48)
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@colleenyoung

@trixie1313, can you clarify the acronym NED in this case. I'm familiar with NED meaning "no evidence of disease" and NET to mean "neuroendocrine tumor." I found reference in the literature to neuroendocrine carcinoma of the breast (NECB) and invasive breast carcinoma with neuroendocrine differentiation (IBC-NED).

Is your use of NED neuroendocrine differentiation?

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Replies to "@trixie1313, can you clarify the acronym NED in this case. I'm familiar with NED meaning "no..."
trixie1313 | @trixie1313 | Feb 25, 2020

@colleenyoung
Sorry - misspelled. NET is the correct acronym. I was told that the tumor had neuroendocrine differentiation which was the same as neuroendocrine cancer. This was after three tumor boards and a second opinion by TheSecondOpinion.org in San Francisco comprised of experts from UCSF, Kaiser, Presbyterian Medical Center, and Stanford.

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