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DiscussionElectrical Discharges on EEG - causality?
Brain & Nervous System | Last Active: Apr 19, 2020 | Replies (15)Comment receiving replies
Replies to "Update: I‘m doing very very poorly. The day I went desperately to that neurologist went very..."
@flowerbloom – Sorry you are having to go through this and your doctors are not listening or believing what you are telling them. Have you seen the story of Jennifer Brea? -- "Maybe this is all in your head": When doctors don't believe women
Jennifer Brea spent months trying to get doctors to take her symptoms seriously — until she started filming herself.
https://www.salon.com/2017/10/23/maybe-this-is-all-in-your-head-when-doctors-dont-believe-women/
She has also given a TED Talk that speaks to some of the problems -- What happens when you have a disease that doctors can't diagnose:
https://www.ted.com/talks/jennifer_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose?language=en
@flowerbloom - I can only imagine that would be maddening to feel like you have a real neurologic illness and you are being told it's a psych issue by the new neurologist you went to see. I would be super frustrated if I felt others didn't believe me and implied in any way I was crazy. Hoping @hopeful33250 and @johnbishop will have some thoughts on this situation. @parus also may have some thoughts on this, as may @rwinney @lioness.
Have you had the appointment yet today with your original neurologist? How is your mom doing today with all of this?