← Return to Electrical Discharges on EEG - causality?

Discussion

Electrical Discharges on EEG - causality?

Brain & Nervous System | Last Active: Apr 19, 2020 | Replies (15)

Comment receiving replies
@flowerbloom

I keep having seizures again and again all day long, with shortness of breath, agitation and an altered state of mind as main symptoms, hard to explain, my brain feels on fire and more than 20 times a day i feel like my brain is shutting down. I had a new EEG done 2 days ago, which had multiple episodes of seizure activity. The one episode they chose to print on paper has at least 10 seconds of intense seizure activity(the spike and waves are way more ample than the one above). My superficial muscles contracted on both hands during hyperventilation and afterwards I got intense shivering and whole body tremmor, because I felt really cold.

My doctor thinks it’s a type of migraine, but i have a hunch it’s some type of encephalopathy, autoimmune or who knows what, because I have trouble breathing. It’s basically like my brain forgot how to breathe. I have to consistently concentrate on breathing because otherwise I get shortness of breath. I keep asking myself if I do really breathe properly during sleep. Because I often wake up confused, as if I forgot the map of my own body. I know that my arms and my head are mine, but I don’t feel like they have a map in my brain. I often feel like that when I wake up and it goes away after 2-20 minutes. Something abnormal has to happen during my sleep too, which is extremely agitated and shallow, so unlike me. The sad thing is that I am not sick enough for a spinal tap, and when I’ll be sick enough it’s gonna be too late for a full recovery I guess; it’s literally mind-blowing. I really don’t get the absurdity in all of this. I’ll see a neurologist today, I hope she takes me seriously, because soon I’ll end up in Emergecy room anyway. The way I’m feeling physically, i should have arrived to the hospital at least 4 days ago because that’s when the extreme worsening of my symptoms emerged. But I DO know if I get hospitalized I’ll probably have to share my seizures with 150 coackroaches and nobody giving a damn *flower* about ordering me the needed investigations. Have seen that happening to people multiple of times.Wish me luck. Sorry for the rant but I’m very frustrated. And not the least, scared. If anyone has any idea that could help, it would be greatly appreciated.

Edit: My IgG is 1400. Normal is 700-1600. Could it be that a subclass of IgG is elevated even though the overall IgG is still under the upper limit?

Jump to this post


Replies to "I keep having seizures again and again all day long, with shortness of breath, agitation and..."

Hello @flowerbloom, I'm so sorry that you are having such difficult physical problems without any real answers or diagnosis. I can hear the frustration in your words! I hope that today's neurologist appointment is helpful to you. Is this a new doctor that you will be seeing?

Here is a video from Mayo about how to approach an appointment with a new specialist. Perhaps it would be helpful to you in talking with this new doctor. Will you post after this appointment with an update? I'd like to know if you gain any new information.

@flowerbloom I recall that you were having an appointment with a neurologist yesterday. I hope that went well for you.
As you are comfortable doing so, could you provide an update?