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januaryjane (@januaryjane)

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Digestive Health | Last Active: Jun 8 11:20am | Replies (18)

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@ginnyodie

My 30 year old daughter (with Gastroparesis) and on TPN via a central line. was recommended to try it from the Rochester Mayo Clinic in August 2019. BCBS would not pay for it, even with Dr. written request and appeal. It was super expensive but I bought 30 days. She tried it for 3 days and ended up in the hospital for 4 days in severe pain and as you know for GP pain there is not much relief. They eventually put her on IV narcotics every 2 hours until the half life and dropped it and when the last passed out she was fine, well very weak etc but no pain. It was horrible.

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Replies to "My 30 year old daughter (with Gastroparesis) and on TPN via a central line. was recommended..."

Good grief ginny, your poor daughter. Thank you for sharing. I know gastroparesis patients have little help. She is brave she tried. Sometimes thats all we can do.