Hello @amylydia57, Welcome to Connect. You mentioned that you have a small improvement in your symptoms from the medications you are taking. While we wait for other members to respond, are you able to share a little more about the symptom that bothers you the most?

The Genetic and Rare Diseases Information Center has some good information and resources listed on their website here for Autoimmune autonomic ganglionopathy - https://rarediseases.info.nih.gov/diseases/11917/autoimmune-autonomic-ganglionopathy

I also ran across an article that you find interesting. A novel treatment for autoimmune autonomic ganglionopathy?: https://n.neurology.org/content/94/15_Supplement/4706