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← Return to Small Fiber Neuropathy turning in to Large Fiber Neuropathy
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Small Fiber Neuropathy turning in to Large Fiber Neuropathy
Neuropathy | Last Active: Apr 8 8:02pm | Replies (42)Comment receiving replies
Hi Rachel @rwinney, That's kind of what my Mayo neurologist told me was going to happen eventually and was what started me searching for my own answers after he also said there were no treatments available to help with numbness symptoms. I'm happy to have found the Facebook group - Solutions to the Pain & Discomfort of Peripheral Neuropathy. Since I started taking the protocol supplements in late 2016, the numbness seems to have receded some and slowed or stopped the progression of my PN. I wouldn't mind having another EMG test to see if my PN has lessened but it's not worth the cost for me.
Replies to "Hi Rachel @rwinney, That's kind of what my Mayo neurologist told me was going to happen..."
Oh my gracious! I never knew small fiber neuropathy could turn into large fiber neuropathy! I am already extremely numb over possibly 75% of my body! I cannot feel that I am wet when I am in a swimming pool. I can only feel temperature and pressure. It is the most bizarre thing in the world to be numb yet burning and stinging at the same time. Go figure!
I guess I will have to learn about this possibility of the changes in neuropathy that can take place. This this disease is by far one of my more brutal diseases and the treatment, Gabapentin, can't stand the side effects! I find it interferes with tracking, memory, concentration, Focus, judgement, coordination, Etc. As I've said before, some of these are symptoms of fibromyalgia and they call that fibro fog. Then, some of my diseases and medicines for those have the same side effects. I guess I'm really special LOL! 😊😁
As difficult as it is to be a patient of so many afflictions, I completely trust God in my circumstance because I know Him well enough to know that He has a higher purpose in it and that it is only temporary. Were it not for Him and His ever-presence, peace and comfort, there's no way I would have made it through all this which by the way keeps coming!
Thank you all for being such a great support and wealth of knowledge! I am extremely thankful for each one of you and wish you all many, many blessings! Sunny flower. 😊
I'm having my EMG/nerve conduction study tomorrow. I figured I would wait until after the test to start the protocol supplements.
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I hear ya on that. Maybe if your test showed lessening, you could get paid from the fb Protocol group and be their poster child! 😉