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Just Want to Talk | Last Active: Sep 12 6:29pm | Replies (4356)Comment receiving replies
Replies to "@beachbum80 how much prednisone are you taking? I am wondering if the hip problems that you..."
JK. I started on prednisone in Jan. of 2016 for an attack on my kidney. I started on 80mg for a long time then had no results so that they gave me mycofenolate along with the prednisone.l maintained this for a year and stopped the mycofenolate because the kidneys responded well to the treatment and during that year they began to titrations the prednisone and in July of 2017 i finally stopped it. But by this time the myopathy was well on is way with my left side most badly affected, my left arm , hand and the leg below the knee. Both feet feels like I am walking on bubble wrap and on Jan.2019 I started to get hip problems. I had an mri in Jan. of this year and it revealed that both hips were beginning to shrivel and I guess dry rot is in process. The worst culprit in this whole affair was the prednisone. Large doses over long time. Only one in a million suffer this hip problem and I have it in both, why couldn’t that be on the lotto