Well your situation is certainly heart rending. I hope things improve for you. It's concerning to hear you are isolated. I hope you have someone helping you or listening to you or advocating for you. I got onto Connect due to my wife's neuropathy and the neuropathy forums are loaded with people who understand what it is and can sympathize. It doesn't mean she is any closer to a cure but it really helps for informational exchange as well as a compassionate ear. I hope you find help and solace in your situation somehow. And I know that people with a strong spiritual background get help that way also. Everyone needs something/someone to be a source of strength to lean on. My wife's faith in God has certainly helped her. Good luck to you.