1. < Neuropathy

Want to walk freely again

Posted by kazz30 @kazz30, Feb 16, 2020

Good morning, my first post in Living with Neuropathy as I have Periferal Neuropathy for the past 7 years as indicated by various nerve studies. I am 87 yrs.old male and in severe pain. I require a Walker or rollator as I can't sustain a balanced gait. The pain is 10+ when I stand for 2-3 minutes and must sit downimmediately. When sitting on a hard chair.. rising is very painful in the lower spine and difficult to stand due to balance problems as my right foot is numb. I also have excruciating pain in the right shin that it freezes my movement until I pause then resume. I had treatments at a pain clinic where I received 12 epidurals and prescribed painkillers from hydrocodone, oxycodone, fentanyl, and morphine sulphate, all to no avail...I still have pain ! Currently I am medication free. I've had several PT sessions including hydrotherapy without success .
All I want to do is walk freely, no more walkers and rollator's.
.

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 16, 2020

Hello @kazz30, Welcome to Mayo Clinic Connect. I'm sure it's difficult for you to deal with the severe pain. I don't have pain with my neuropathy but do have lower back pain which makes it difficult for me to walk, sit or stand for very long. My balance is also not the greatest so I've become very good with the senior shuffle during the winter time. There is another discussion you might want to join in on and learn what other members have shared that help them.

> Groups > Neuropathy > Ideas for pain relief from Small Fiber Neuropathy (SFN)
-- https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

You mentioned that you have been to a pain clinic and also have had physical therapy that have not helped you. Have you heard about or tried Myofascial Release Therapy? There is another discussion on Connect that discusses this type of therapy here:

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

REPLY
1 reply
Robin | @birdierobin | Feb 16, 2020

Kazz, I’m so sorry for the pain you experience. At 87 years old you’ve gone your whole life to end up here! Stinks, I feel you hang in there though I don’t take any drugs for my pain either I just bear it is unbearable at times. Pain meds stink and I have a lot of side effects that I experience and as I read others do too. Will be praying for you that you can throw away that Walker because I like to throw mine right away with it

REPLY
1 reply
kazz30 | @kazz30 | Feb 17, 2020
In reply to @johnbishop "Hello @kazz30, Welcome to Mayo Clinic Connect. I'm sure it's difficult for you to deal with..." + (show)
@johnbishop

Hello @kazz30, Welcome to Mayo Clinic Connect. I'm sure it's difficult for you to deal with the severe pain. I don't have pain with my neuropathy but do have lower back pain which makes it difficult for me to walk, sit or stand for very long. My balance is also not the greatest so I've become very good with the senior shuffle during the winter time. There is another discussion you might want to join in on and learn what other members have shared that help them.

> Groups > Neuropathy > Ideas for pain relief from Small Fiber Neuropathy (SFN)
-- https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/

You mentioned that you have been to a pain clinic and also have had physical therapy that have not helped you. Have you heard about or tried Myofascial Release Therapy? There is another discussion on Connect that discusses this type of therapy here:

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

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Thank you John, I will look into the links you provided . Also enjoy reading your in depth insights of the pained members.

REPLY
kazz30 | @kazz30 | Feb 17, 2020
In reply to @birdierobin "Kazz, I’m so sorry for the pain you experience. At 87 years old you’ve gone your..." + (show)
@birdierobin

Kazz, I’m so sorry for the pain you experience. At 87 years old you’ve gone your whole life to end up here! Stinks, I feel you hang in there though I don’t take any drugs for my pain either I just bear it is unbearable at times. Pain meds stink and I have a lot of side effects that I experience and as I read others do too. Will be praying for you that you can throw away that Walker because I like to throw mine right away with it

Jump to this post

Thanks Robin for your kind words. I guess I'm hoping there is miracle out there to disappear my pain. If not, I have to accept and life continues. Keep the Faith !

REPLY
1 reply
Robin | @birdierobin | Feb 17, 2020
In reply to @kazz30 "Thanks Robin for your kind words. I guess I'm hoping there is miracle out there to..." + (show)
@kazz30

Thanks Robin for your kind words. I guess I'm hoping there is miracle out there to disappear my pain. If not, I have to accept and life continues. Keep the Faith !

Jump to this post

I will if you will!!!!!

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