Generalized Sensorimotor Peripheral Neuropathy over my entire body

Try the cold laser therapy. My friends and I have been helped by this for the burning feet, we were having so much pain. Now, it is so light and we are hoping that it goes away completely. We each bought our own from Amazon for $129. Ebay has some also but make sure that if you don't feel any relief with in 1 week that you can send it back where ever you buy it.

Welcome back @newzbug, Alpha Lipoic Acid is also one of the group of supplements I take for my neuropathy symptoms (numbness only). I don't think it by itself will help that much but then I'm basing that on my opinion and reading/research. It also makes a difference what kind of ALA you are taking since a lot of the over the counter ALA is 50% synthetic which doesn't do much for you. I take the R-ALA which is the is the form of lipoic acid that occurs naturally in plants, animals and the human body and is responsible for the specific beneficial effects of Alpha-Lipoic acid. (more information here: https://geronova.com/consumers/different-forms-of-lipoic-acid/). I posted my story and what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.

You might also be interested in an e-catalog of topics on neuropathy from the Foundation for Peripheral Neuropathy that I received in an email today - lots of helpful information - https://www.foundationforpn.org/wp-content/uploads/2020/02/01.29.2020-Website-eCatalog.pdf

I do have some weird itching sometimes but not sure what causes it...mostly on my arms and some on my calves. I've been making sure to keep the skin hydrated with a moisturizer. I used to use a magnesium lotion but switched to some less expensive stuff but I may go back to using it to see if that helps the itching some.

I can relate to the numbness in the hands and arms when sleeping. Mine happens when I am sleeping on my side and my arm or hand is under a pillow which I think is pinching the ulnar nerve. The numbness goes away a few minutes after I move to my other side.

If your leg pain is anything like my arm pain I’m feeling it for you I don’t have itching but I do have pain & when it hits if it didn’t go away I think I put a gun to my head but fortunately it goes away

@newzbug, @johnbishop Thanks for your return with new information for members and I see John Bishop has sent you off on the hunt for more. One thing I did notice that both of you deal with itching. Mine started about the same time I began tapering off an anti-depressant. Itchy finger joins. (My friend said it was a fly of some kind of an early MN mosquito. No way.)

Sometimes it is on the bones of my neck...around my ears, the back of my knee and all around the ankles. The worst part is down my shins which I tend to scratch in the middle of the night. I did talk to my doctor about neuropathic itching and she prescribed Triamcinolone Acetonide Cream. I am guessing it is a steroid. It does work on the big blotches on my shins if I remember to put it on them.

Be safe and protected today. Chris

my neurologist only recommended the ala because "It's primarily for people with diabetic neuropathy, but it can't hurt". I don't know if I should seek out a new doc who is more info savvy or what. I live in Michigan and really like the hospital I live near, so I kinda want to stay within this area. But Mayo is my support group and I don't know of any others near me. I had a couple of Massive Pulmonary Embolisms in 2018 and so trying to get caught up in caring for all my ills right now. Thanks for the recommendation of reading, I will check it out. The biggest issue with my feet is the numbness in various parts of my feet.

Adorable picture! Hang in there.

I think some of the itchy spots elsewhere for me are due to a skin condition I inherited from my dad. Seborrheic Keratosis. I have these bumps over most of my back (flesh toned and raised) that get really itchy. She prescribed some steroid cream for periodic use to help with the itching and froze off some of the worse ones. I use a back scratcher cuz they drive me crazy....My husband won['t scratch my back cuz he's afraid he'll hurt me. Enough talking about that, makes me itchy just thinking about it.

When I developed CIDP, I almost went crazy from the itching in my feet. It was worse at night and kept me from sleeping. I woukd get up in the middle of the night to cover my feet in ice packs, the only thing that helped. The itching went away when I started IVIG infusions. Try putting an ice pack on your itchy spot.

Im only chiming in to 2nd the annoyance and
the drive you out of your mind itching! I went through a miserable bout of Chilblains last year and although it was only with me for 4 months, it was a monster, especially at night. Would not wish on anyone. Ice was my only savior as well.

I find with that annoying itching that scratching does not touch, that to use pressure and slow rubbing often does the trick. Also with your stabbing pain in your upper leg, I, too, had that and when it hit, I'd say ouch! Myofacial Release therapy made it just plain go away. After a few months it's been creeping back but at a tolerable level. My MRT therapist is off having a baby and now with the COVID19 sheltering in place - well, I'll get back to the therapy when I can. Before that I was using Neuropathy Oil I bought from a magazine - snake oil I thought but before I had MRT therapy I used it and the knives retreated before I even finished covering the attack area. However, the oil contains frankincense and myrrh and is quite pungent. Still, I was delighted to find something that worked if only temporarily. MRT was like a miracle.
Recently I started taking Taurine and Acetyl L-Carnitine and for the first time in literally years, I can feel my toes - they had mostly gone numb. That was exciting. I found that my previously cold bathroom tiles had not mysteriously warmed up. It's odd to have my toes back but wonderful too. Since I started taking both supplements at the same time, I don't know which is working or if they work in tandem.
This forum is very helpful. I hope it gets back up and going soon. And, I wish us all luck with COVID19, stay safe.