← Return to Generalized Sensorimotor Peripheral Neuropathy over my entire body

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@johnbishop

Welcome back @newzbug, Alpha Lipoic Acid is also one of the group of supplements I take for my neuropathy symptoms (numbness only). I don't think it by itself will help that much but then I'm basing that on my opinion and reading/research. It also makes a difference what kind of ALA you are taking since a lot of the over the counter ALA is 50% synthetic which doesn't do much for you. I take the R-ALA which is the is the form of lipoic acid that occurs naturally in plants, animals and the human body and is responsible for the specific beneficial effects of Alpha-Lipoic acid. (more information here: https://geronova.com/consumers/different-forms-of-lipoic-acid/). I posted my story and what helps me earlier on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985.

You might also be interested in an e-catalog of topics on neuropathy from the Foundation for Peripheral Neuropathy that I received in an email today - lots of helpful information - https://www.foundationforpn.org/wp-content/uploads/2020/02/01.29.2020-Website-eCatalog.pdf

I do have some weird itching sometimes but not sure what causes it...mostly on my arms and some on my calves. I've been making sure to keep the skin hydrated with a moisturizer. I used to use a magnesium lotion but switched to some less expensive stuff but I may go back to using it to see if that helps the itching some.

I can relate to the numbness in the hands and arms when sleeping. Mine happens when I am sleeping on my side and my arm or hand is under a pillow which I think is pinching the ulnar nerve. The numbness goes away a few minutes after I move to my other side.

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Replies to "Welcome back @newzbug, Alpha Lipoic Acid is also one of the group of supplements I take..."

@newzbug, @johnbishop Thanks for your return with new information for members and I see John Bishop has sent you off on the hunt for more. One thing I did notice that both of you deal with itching. Mine started about the same time I began tapering off an anti-depressant. Itchy finger joins. (My friend said it was a fly of some kind of an early MN mosquito. No way.)

Sometimes it is on the bones of my neck...around my ears, the back of my knee and all around the ankles. The worst part is down my shins which I tend to scratch in the middle of the night. I did talk to my doctor about neuropathic itching and she prescribed Triamcinolone Acetonide Cream. I am guessing it is a steroid. It does work on the big blotches on my shins if I remember to put it on them.

Be safe and protected today. Chris

my neurologist only recommended the ala because "It's primarily for people with diabetic neuropathy, but it can't hurt". I don't know if I should seek out a new doc who is more info savvy or what. I live in Michigan and really like the hospital I live near, so I kinda want to stay within this area. But Mayo is my support group and I don't know of any others near me. I had a couple of Massive Pulmonary Embolisms in 2018 and so trying to get caught up in caring for all my ills right now. Thanks for the recommendation of reading, I will check it out. The biggest issue with my feet is the numbness in various parts of my feet.