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← Return to Success with low dose naltrexone for Autoimmune disorders
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Success with low dose naltrexone for Autoimmune disorders
Autoimmune Diseases | Last Active: Oct 28 9:10am | Replies (109)Comment receiving replies
I am in Remission from Relapsing Polychondritis on May 2021 will be 8 years...I my rheumy had no experience with LDN but in three weeks of taking it I went from barely able to move to dancing with delight. Opioids stopped contolling my pain and when we ran out of meds we had that talk.. I did give up...a friend gave me two more options and unlike the other eight rheumys was open to looking at something not tried before...Wahl's protocol and LDN were those options...I am a foodie and Wahl's didn't seem like something I would stay on so LDN was it...I was given 4.5 mg and for three weeks it was the worst flu but I had been warned that might happen..but after the three weeks I woke up with no pain and it was wonderful...Since then gradually improvements have occurred...my allergies lessened. My skin improved ...my trach has started to heal my breathing is better and off O2 shortly after starting it. I wish it had been started sooner as I wouldn't have as much damage to live with.
Replies to "I am in Remission from Relapsing Polychondritis on May 2021 will be 8 years...I my rheumy..."
Wow, congratulations. That just sounds amazing to me.
I just started on it myself for unknown auto immune issue. My doctor is quick to jump on the stuff and she’s been fantastic and continuing to figure this out.
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Hello @goodfriends, Welcome back to Connect. I see that you last posted in 2011. Thank you so much for coming back to Connect and sharing your experience with low dose naltrexone (LDN). To be in remission for almost 8 years is no minor accomplishment. Your experience with LDN is an encouraging one that can offer others with Relapsing Polychondritis some hope and possible answers in their search for something to help.
@nibor63 @mcwilliamssr @rpwarriorlady @monikamouse @ethellee97 and @polytina have posted in the Relapsing Polychondritis discussion here: https://connect.mayoclinic.org/discussion/relapsing-polychondritis/ and I'm sure will be interested in your story.
I also tried the Wahls Protocol diet for a few months and found it somewhat difficult and I only stayed on it a few months. It did really start my journey on eating healthier and focusing on nutrition vs junk and processed foods. You mentioned you made the decision between the Wahls Protocol diet and LDN and went with the LDN as an option to help your Relapsing Polychondritis. Did you make any other diet or lifestyle changes that helped you?