← Return to Idiopathic Progressive Polyneuropathy: How to find a specialist?

Discussion
Comment receiving replies
@jesfactsmon

Hi @robtlhughes you are likely to get all sorts of answers to your question here. Some will say absolutely do try to find a good neurologist. My feeling is that a neurologist may be helpful in diagnosing that you have or do not have neuropathy (which has already been done in your case), and what type it is (e.g. small fiber, autonomic, etc.) but beyond that, from what I have read by folks here on Mayo Connect, they don't do too much for most people with PN. There are a number of drugs people take for the pain and you do need a doctor to get them but whether that doc is a neurologist or not may not matter. My wife has the PN in our family, and she has chosen not to see a neurologist. The only neurologist I personally ever went to was for MS back in 1999. After being diagnosed with it the neurologist tried to use the hard sell to push me into one of what they then referred to as the "ABC" drugs, I forget the specific names now, but there were 3 of them. I declined and have had very few issues with MS since. If I'd opted for the drugs I would have taken them once a week and had flu like symptoms for 2 days every week. Ugh! All of that said, there are a number of things people are turning to for help with their pain. Few people seem to get better from PN. I do remember that one poster here, @avmcbellar ,said she thinks she is getting better. But if you follow this forum assiduously you will hear about a lot of different strategies people are using to deal with PN. Best of luck figuring out your own dilemma, Hank

Jump to this post


Replies to "Hi @robtlhughes you are likely to get all sorts of answers to your question here. Some..."

Hank - It's a pleasure to see your face now! 😊 You look as friendly and caring as you sound.

@jesfactsmon Hank, you never mentioned that you have MS!!!! I was floored when I read that you do. I am so proud of you that you did not take the MS meds, and are still doing ok. God willing, your MS will stay inactive. If you are comfortable, let me know more about your MS, and how it effects you. Thinking about you, Hank. Lori Renee