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@mikeoc

Hi I have been diagnosed with small fiber neuropathy also. Went to Lahey clinic and Mass General. I got the feeling that because the doctors can not exactly explain how or why I have this condition that some how its either my fault or I am making it up they are dismissive of me. Anyway I am taking 1200mg a day of gabapentin and duloxetine x3 a day, but my best relief comes from lorazepam and asper cream and lidocaine applied very liberally during all day. I also use a tens some times but it is a pain . Do not give up some where some time someone will figure it all out ,or some doctor will stumble on a fix by accident. Stay strong .Watch a good movie, read a good book, watch some old tv shows on YouTube. Distracting my self from the burning scrapping digging pain is a big part of my learning to live with this privation to my health. Good luck to all and GOD bless

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Replies to "Hi I have been diagnosed with small fiber neuropathy also. Went to Lahey clinic and Mass..."

Hello @mikeoc, Welcome to Mayo Clinic Connect. Thank you for sharing what helps you cope with this horrible condition. It is most definitely not your fault and you have a great attitude that will go along way to helping you cope easier. There are a couple of other discussions you might want to join in here on Connect to learn what other members are doing to help their symptoms.

> Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
> Groups > Neuropathy > Ideas for pain relief from Small Fiber Neuropathy (SFN)
-- https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/
> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Thanks so much! I posted about the appointment I had today it's crazy the conflicts I'm being told.

Thank you for your encouraging words. Be as well as well can be.
Rachel