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DiscussionIdiopathic Progressive Polyneuropathy: How to find a specialist?
Neuropathy | Last Active: Nov 29, 2023 | Replies (105)Comment receiving replies
Replies to "Good evening @tfarrell. I am responding to your post about reaching a maximum in treatment. This..."
Hello,
My name is Todd. Ive been reading posts on this forum for the past 2 years but have never actually posted anything. I have fast (by my standards) progressing idiopathic poly neuropathy. The tingling burning sensation in my hands, feet, arms (to my elbows) and legs (now to my hips) is impossible to ignore most of the day.
I guess what I'm asking you is, what questions should I be asking? I have seen 3 neurologists with no good answers, and the 600mg Gabapentin and 60mg of nortriptyline daily, do nothing.
I would love to find a route cause, and if not, at least a way to slow the progression down and curb the pain.
Please ask me questions as I'm looking for direction and feel like I'm just flailing and a bit on my own.
Todd