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Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Neuroendocrine Tumors (NETs) | Last Active: May 29, 2020 | Replies (11)
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@ethanmcconkey

Hi @worriedlovingwife I thought I would share this additional discussion on MEN-1 so that you can see what others have said: https://connect.mayoclinic.org/discussion/i-have-a-disease-called-multiple-endocrine-neoplasia-1-and-i-have/

I'd also like to tag @markbrinkley and @kbfan19 in hopes they come back to join in on this topic again.

Back to you @worriedlovingwife, to repeat @hopeful33250's question, your husband has neuroendocrine tumor correct? Also, how are you coping with all of this?

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Replies to "Hi @worriedlovingwife I thought I would share this additional discussion on MEN-1 so that you can..."
worriedlovingwife | @worriedlovingwife | Feb 15, 2020

He had two tumors on his pancreas so they removed his pancreas in 2018. It has metastized to his liver and pelvis bone. Hundreds of pinpoints on his liver and one spot on his pelvis.
I’m ok. I pretty much keep things inside because if I talk to my husband it scares him to death. I just lost my brother December 26 to multiple myeloma so I can’t really talk to my dad because he’s dealing with his own grief. I’m strong I’ll get him thru this. Thank you for asking

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