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Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Neuroendocrine Tumors (NETs) | Last Active: May 29, 2020 | Replies (11)
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@contentandwell

@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of recovery? If you prefer to not answer that I understand.
I am doing well. After they ablated the malignant lesions I had a liver transplant. They still check me with an MRI yearly to make sure the cancer did not metastasize. I have to go for that in April. My liver is the least of my problems these days though.
JK

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Replies to "@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of..."
worriedlovingwife | @worriedlovingwife | Feb 13, 2020

Correct there is no hope to beat it. One of the first things I asked about was a liver transplant and they said it’s not an option because his cancer is endocrine it would come back in the transplanted liver. I’m glad your new liver is the least of your worries but sad that it sounds like you have bigger worries. I’m here to listen if you need to talk
HR

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