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Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
Neuroendocrine Tumors (NETs) | Last Active: Jun 10 9:58am | Replies (14)Comment receiving replies
Hi JK thanks for replying. I just realized my talk to text did not pick up everything I was saying. He has MEN type 1. When his surgeon first saw the scan he said the same as you “don’t worry I can get it with abalation”” because it just showed two spots. In reality it hundreds of pinpoint spots. He’s stage 4 terminal. I just lost my brother the day after Christmas from multiple myeloma. I feel like we should own stock in MD Anderson because we’ve been going there for 16 years with my brother. So how are you doing now? Are you in remission? I’m at work so can’t look up anything on your type of cancer. Is there a likelyhood it could come back?
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@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of recovery? If you prefer to not answer that I understand.
I am doing well. After they ablated the malignant lesions I had a liver transplant. They still check me with an MRI yearly to make sure the cancer did not metastasize. I have to go for that in April. My liver is the least of my problems these days though.
JK