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How Neuropathy has impacted swallowing

Neuropathy | Last Active: Feb 27, 2020 | Replies (40)
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@jimhd

@rwinney I was granted Social Security Disability when I was 55. I don't remember when I started Medicare, but I've been quite satisfied with original basic Medicare, a ppo plan. I have supplemental with IAC and supplemental prescription with Humana. Except for the deductibles, I pay nothing out of pocket. We found a good financial advisor to set up an annuity, and he also has taken care of our Medicare. He advises us each year of the best options and takes care of the paperwork for us. Maybe you know someone like Henrik who could walk you through this puzzle.

Jim

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Rachel, Volunteer Mentor | @rwinney | Feb 27, 2020

@jimhd Thanks Jim. I appreciate your advice. I am working with an insurance rep. I originally chose an HMO bc of medicine cost and potential procedure cost (should I end up back in Apherisis trying new things). The basic Medicare came with a 20% co-insurance which would have killed me should I opt for more procedures. PPO was high monthly premium. I explored Medi-gap to help with potential procedure cost (if on basic medicare) but needed to participate with an HMO before becomming eligible for medi-gap. It's all craziness to me honestly.

Now I'm so fed up with my Neurologist and researching a new one. Trying to shift my game plan towards rehab approach and learning to live a better quality of life vs. all these drugs and crap shoot procedures.

In the mean time...my glorious current Neuro dropped the ball by never submitting my updated medical records last Sept for my long-term disability and I've just received my DENIAL letter of benefits.

Some days it's beyond me to think what I do just to advocate for myself, as who else will, yet, I'm the sick one. So, the jumping through hoops continues and all I want... is to simply feel better and function daily with my family.

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