← Return to Non Specific Myopathy

Discussion
jlw (@jlw)

Non Specific Myopathy

Autoimmune Diseases | Last Active: Feb 13, 2020 | Replies (8)

Comment receiving replies
@jlw

Thank you. I get so frustrated. I literally was normal working person with hardly any issues. Then all of a sudden it was taken from me and we still don’t know exactly why. We started me back on 60mg of Prednisone po and I go back to my doctor in a month. I know they help. I can walk without a walker. Still limited but a little more mobile and less pain. Off and on I have been on oral pain medicine, but I worry too much about addiction and they, truthfully, do not help the pain that much. Lyrica helped some, but leg swelling was an issue. I keep pushing and am lucky I do have a caring PMD. I am trying so hard to not stay frustrated, but I went to Mayo because they are experts. Expensive and painful re-testing and we are right where I started. 🙁

Jump to this post


Replies to "Thank you. I get so frustrated. I literally was normal working person with hardly any issues...."

@jlw. You said you’ve restarted 60mgs of prednisone daily. Ask your doctor now for a script for bisphosphonates to keep your bones healthy! I didn’t know of the importance and I now have pretty bad osteoporosis. Just what I needed! There are pills, IVmeds and injections for osteoporosis meds. Can you call today and prevent another problem?