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Non Specific Myopathy

Autoimmune Diseases | Last Active: Apr 10 8:03pm | Replies (11)

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With all due respect, I have seen a rheumatologist, to neurologist, to neuromuscular, to another rheumatologist, to a mayo neurologist and another surgeon. I have had 3 EMG’s in less than 1 year, I have had an MRI, I have had 3 muscle biopsies, a skin biopsy and more blood tests than any one person should. I started in Springfield Illinois, to St Louis Missouri and then to Mayo in Rochester. From my experience Mayo has always been the cream of the crop so starting over again, in St Louis, again? I know I have no patience, but seriously? What is an answer? I don’t know, but constantly flitting from doctor to doctor sure hasn’t worked for me so to continue to do the same thing tends to yield the same result.

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Replies to "With all due respect, I have seen a rheumatologist, to neurologist, to neuromuscular, to another rheumatologist,..."

@jlw
https://connect.mayoclinic.org/discussion/distal-myopathy/ The discussion on this page may be of some interest. They talk about many types of myopathy