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Uncontrolled epilepsy

Epilepsy & Seizures | Last Active: 1 day ago | Replies (5)

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@jakedduck1

@zachareycovert
I’m sorry to hear your son has Epilepsy.
Blows to the head can certainly cause Epilepsy. Did your son have a CT or MRI done after his assault? As a kid my friend(?) hit me in the head with a baseball bat. I believe that’s what caused my epilepsy although I’ll never know for sure. “I need to have UNDERSTANDING to WHY” is it really that important how or why, I mean what is it going to accomplish other than satisfying someones curiosity. Approximately 65% of people will never know the cause. You mentioned your son has a VNS, has it ever helped? Usually the longer it’s in the more effective it becomes. I’m not a fan of VNS myself and refused it when it was offered.
Stress is definitely a seizure trigger. Is your son under a lot of stress? Anxiety is also a major seizure trigger.
The school certainly should have informed you of your sons condition and if that was his first seizure he should’ve been taken to the emergency room and evaluated. It’s really seldom necessary to go to the hospital or call the doctor because of a seizure. If seizures are different, for example, more severe, more frequent, last longer, breathing problems,
confusion after the seizure lasts more than 15 or so minutes or longer than usual. Always call an ambulance if they have seizures without regaining consciousness in between, it’s likely Status Epilepticus which is a medical emergency. The longer a seizure continues the less likely it is going to resolve.
Does your son have nocturnal seizures, If so like you I too would be concerned about the possibility of S.U.D.E.P. (Sudden Unexpected Death in Epilepsy.) I believe your son would benefit from going to an epilepsy center and being evaluated by an Epileptologist. If your near Mayo Clinic in Rochester Minn It’s a level for epilepsy center and rated as the number one Center in the United States.
Here is a list of Epilepsy Centers in the United States,
https://www.naec-epilepsy.org/about-epilepsy-centers/find-an-epilepsy-center/
All my best to your family,
Jake

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Replies to "@zachareycovert I’m sorry to hear your son has Epilepsy. Blows to the head can certainly cause..."

I am reading through many of these epilepsy issues. I was diagnosed as a child with complex partials and generalized epilepsy. When reaching highschool, my seizures were controlled for 30 plus years until I to suffered an assault to the back of my brain, ie; resulting in occipital neuralgia, severe migraines, among other complex complications. Seizures returned quickly with a vengeance and no doctor I saw could control it. I also started having, what you refer to nocturnal seizures, which I never experienced before. Please does anyone know anything about these, what causes these? I never have heard my neurologist use that term, and up until a couple years ago, I never experienced these, however, it shows on an EEG that I wore home for 3 days. What starts these? and even though I am on medication, why doesnt it prevent this phenomenon? I am perplexed, and unfortunately, the neurologists here, are not very good. Its all about medicating, and not resolving the root of the cause.