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hockeymom25 (@hockeymom25)

Struggling-cancer is back, switching to TDM1

Breast Cancer | Last Active: Feb 4, 2020 | Replies (3)

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@elizm

@hockeymom25
Dear Hockeymom25, as a HER2+++ patient myself, I can sincerely empathize with your predicament. The research community is just getting around to wondering if we're a novel (separate?) subtype of breast cancer. In addition, some of us are even resistant to or become resistant to Herceptin.

Did your oncologist say that this lesion was breast cancer? HER2+? or a second cancer, different from the first? or, because of its location, they are unable to do a biopsy on it?

As to MBC, research is making headway using T-DM1 and, to date, they have some encouraging news about it's use. Not knowing what treatments/procedures you had (lumpectomy? chemo? hormonal therapy?), other than two years of Herceptin, or the pathology of your new lesion, it's difficult to know where you may fit into it all.

However, you may be interested in reading the following:
https://www.cancer.gov/news-events/cancer-currents-blog/2019/kadcyla-fda-breast-her2-adjuvant
In the meantime, I wish you courage and success on this newest journey.

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Replies to "@hockeymom25 Dear Hockeymom25, as a HER2+++ patient myself, I can sincerely empathize with your predicament. The..."

Thanks for sharing that article. I was on Taxol for 12 weeks and Perjeta with Herceptin. I had to stop the Perjeta due to extreme rashes/itching. I was also on Tamioxen but they are switching that because it must not be working. I actually had a double mastectomy last July due to very large breasts and back pain. They do believe it is still breast cancer and feel it is still triple positive but they are not able to operate to remove the tumor based on the spot that it’s in.

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