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My MAC and bronchiectasis treatment

MAC & Bronchiectasis | Last Active: Feb 19, 2020 | Replies (48)

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@rits

Thanks again, Terri, and Sue as well, for your interest and support. You're the BEST!

I talked to Dr. McShane in Texas yesterday and she reassured me that she will treat my bacteria from there. The concierge at Tyler has contacted U of Chicago and Dr McShane's records with respect to me are being sent. I hope she will have all the test results, including ct scans and the bronchoscopy as well as her notes. Everything from the year I saw her here. I am so very glad to be her patient because she is such a great doctor and we have a wonderful rapport. We are in agreement with respect to everything, including my water aerobics in an indoor pool, my use of tap water and that my U of Chicago pulmonologist has no interest in treating lung bacteria.

I was anxious to hear what Dr. McShane would say with respect to my stopping Arikayce at Christmas. She said that I was right to stop and she does not want me to take it again. However, she wants me to continue the oral antibiotics until June, one year after the first negative. She had said that I might be able to stop earlier but has decided that she wants me to have the full treatment so long as I am tolerating the drugs.

I will be sending my sputum samples to her in Texas and will send one for that second test that wasn't ordered in Chicago. She said that, after two weeks at Tyler, she knows that the lab receives samples from all over but she doesn't know the procedure. She will find out and let me know.

As for going to Texas, I told her that, if she believes it is necessary, I will come. But I don't want to!

It was wonderful to talk to her again. Rita

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Replies to "Thanks again, Terri, and Sue as well, for your interest and support. You're the BEST! I..."

Hello Rita, I wonder if you could share why your arikayce med was stopped. I have been using my Aricayce nebulizer every other day for 4 months now and will see my pulmonologist in March to review. I will be submitting a sputum sample tomorrow., but it will really be too soon to expect any results. Best to you, Candy, ( sounder).