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My MAC and bronchiectasis treatment

MAC & Bronchiectasis | Last Active: Feb 19, 2020 | Replies (48)

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@rits

Thanks Terri. I brought in a sample on 1/29, first one since October, and, no surprise, I haven't heard anything yet. You may recall that Dr McShane left ME (waaaa!) for Tyler so the specimen sample was given to my general pulmonologist. Unfortunately, it appears that she only ordered the test for ntm and I also had pseudomonas and klibsiella. Those were gone for several months but I continued treating with Arikayce which I had to stop at Christmas. I'm concerned with whether they have come back and hoped for good test results but no test = no results. Sigh.

Dr. Mcshane is going to treat me from Tyler. I was waiting for test results but I'm going to reach out to her this week. I need to get her contact info in Texas from her nurse.

I use a Smartvest, aerobika and 3% saline 2x per day. My lungs which are compromised with severe chronic bronchitis as well as bronchiectasis cannot tolerate 7%. Rita

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Replies to "Thanks Terri. I brought in a sample on 1/29, first one since October, and, no surprise,..."

Rita, it sounds like you need to take the bull by the horns and INSIST your sputem be tested for the things you have had before, along with a suseptibility test. And INSIST on it being sent away to either Tyler, Mayo, or NJH for lab testing. Local labs like Labquest, etc., do not cut it.