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My MAC and bronchiectasis treatment
MAC & Bronchiectasis | Last Active: Feb 19, 2020 | Replies (48)Comment receiving replies
I have the nodular form of MAC and tried the 3 drug cocktail about 12 years ago. After 2 months I had severe joint pain and swelling from a reaction to one of the drugs that has no alternative. My doctor said there was no guarantee the the MAC would be eradicated with 18 to 24 month treatment. We decided that the cure was worse than the disease and I stopped treatment. The MAC has remained fairly stable as shown in CT scans. My bigger problem is Bronchiectasis and pseudomonas. I’m trying various treatments for those with with disappointing success. Good luck.
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@rosaclifton
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@rosalynclifton I'm sorry to hear you are struggling with bronchiectasis and pseudomonas for so long. Bronchiectasis can be particularly scary since there really is no cure - only management is yours stable or does it seem to be worsening?
I have been lucky that my condition, other than the infections with MAC and pseudo, is fairly mild, my lungs are still working okay and are able to produce a good cough for clearing. Both my husband and I found pseudomonas hard to beat, but inhaled Tobramycin finally knocked mine out. He was on 4 different antibiotics before his infection finally responded to doxycycline.
What treatments have you tried?
Sue