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My MAC and bronchiectasis treatment

MAC & Bronchiectasis | Last Active: Feb 19, 2020 | Replies (48)

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@unicorn

just wondering if anyone is having heart palpitations with this disease?? I have been off meds for 2 years, destroyed my organs, and now the palpitations are getting much worse. High hemoglobin and hemotocrit, Possibly going on oxygen may help. Not the fashion statement I was hoping for.

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Replies to "just wondering if anyone is having heart palpitations with this disease?? I have been off meds..."

@unicorn What does your doc have to say about the palpitations? As far as I know they are not typically a MAC or bronchiectasis symptom, but we are all different. In your situation I would surely want them to find a diagnosis that fit the symptoms. Sue

@unicorn I started having palpitations about a year before I had my MAC diagnosis. That’s what sent me to the Dr to start with. It was during an x ray and then subsequent CT scan that my Dr saw the nodules and then the NTM and bronchiectasis diagnosis came after my hemoptysis. I had then also been Dx with atrial fibrillation (A Fib) and had an ablation procedure. I wonder if the shortness of breath could contribute to the palpitations. I haven’t had it again since the ablation 2 years ago and I’ve never taken any of the antibiotics for the NTM. Just another mystery of this disease.
Gina

@unicorn Crista!! So glad to hear from you! You have been on my mind a lot. As for the heart palpitations, YES! I was getting them a lot also. I was told I have SVT (superventricular tachicartia) I was put on heart meds; Cartia 240 mg. It has helped a lot. I sleep with oxygen and use it at the gym; so I think the oxygen supplementation has helped. The heart and lungs work pretty much as a unit. When the heart is bad, the lungs falter. When the lungs are bad, the heart suffers. I find it interesting that heart palpitations are shaping up to be a common thread with this disease.