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My MAC and bronchiectasis treatment

MAC & Bronchiectasis | Last Active: Feb 19, 2020 | Replies (48)

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@thumperguy

Considering the good press that inhalation therapy using 7%saline has recently received on this forum, that it hasn’t been mentioned in this thread so far is puzzling.
Is there some compelling reason pal131 should avoid it? Don

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Replies to "Considering the good press that inhalation therapy using 7%saline has recently received on this forum, that..."

@thumperguy I am kind of a research nerd, so I read everything I could find about 7% saline when it was first mentioned here. There is some fairly compelling evidence, but very little has been written that is easily digested if you're not used to reading scientific papers. I think @windwalker may have posted a table showing which strengths are effective on various NTM strains. I think I will look for a bit this morning for something easy to read and share it under the 7% saline discussion.
I had a difficult time getting a doc to prescribe it at first. My ID doc said, "I don't know much about lungs, only infections. See your pulmo." My original pulmo just said "No." Finally, my primary said, "Hmm, first I've heard of it. Let me call my Pharm Doc and discuss it." In a few minutes, he did some research and told her it looked like it could help, and at worst it wouldn't hurt or interact with anything else I take, so let's try it. My new pulmo, when I told her I was on it, said "Yes, it's very good for keeping MAC down. I'd like you to use it twice a day."
So now I use it, and have only needed my levalbuterol neb when I had a cold, and my rescue inhaler a handful of times. So it has definitely helped clear my lungs, which seems to help my asthma as well. The problem is, it's working so well I forget to sit down and use it sometimes!
Look at all the things we use salt for, other than to season our food. No wonder it was as valuable as gold to ancient people.
Sue

I haven’t commented as I don’t know if using the 7% saline solution is the reason for my success or not.....I guess even after a year or more on this forum, I have not contracted any major infections that necessitated antibiotic interventions for bronchiectasis. I was diagnosed in 2017, so at this point, I guess I’m a compelling reason to use it! However, when I say things like this, I get worried something will jinx everything as the pulmonologist said this disease moves at its own pace....unique to each person.....