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Fibrillary glomerulonephritis

Kidney & Bladder | Last Active: Aug 21, 2023 | Replies (76)

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@jennifer208

Sorry haven't been on here for a while. But since I can't fly right now they expedited my medicine here to Idaho. I started my injections last Monday. I do them twice a week Monday and Thursday. Today was my third injection. I also take a pill in the morning and one in the evening every day. I will keep you guys posted

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Replies to "Sorry haven't been on here for a while. But since I can't fly right now they..."

my sister in law was just diagnosed with this. Can you share name of Dr or hospital that has the clinical trials helping you? I appreciate any information you can share on a dr she can turn to

Hello @jennifer208,

I was noticing that it has been a while since you last posted. How are you doing with the med that was expedited to you? When you last posted you had your third injection.

I would enjoy hearing from you. Could you post an update at your convenience?