I have been on your same journey since Oct 2017 and just found out Friday I am now eligible for transplant evaluation.
I visited Mayo Rochester in Apr 2019 and was also told there is no cure and very rare.
I have had 4 Rituxin treatments and felt so much better until they no longer seemed to help.
I have figured out (after repeatedly asking for diet information and not receiving any) that diet is a big factor in feeling better. I met with a dialysis nurse/dietician who was of great help and gave me info on what NOT to eat.
I wish you all the very best on this journey!