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Fibrillary glomerulonephritis

Kidney & Bladder | Last Active: Aug 21, 2023 | Replies (76)

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@jennifer208

So I was diagnosed with fibrillary glomerulonephritis in Jan. I had a check up today hoping I would get news of what's causing it. But my doctor said she doesn't know and will monitor me every three months. I went to the mayo clinic in Scottsdale end of Jan and they said I should get a bone marrow biopsy. So today I asked her if we could do it. She said she doubts that it will say anything but she did put a request in that I get one. So now waiting to get that. I guess I'm just frustrated because I'm told my kidney function will decline and if we have to do dialosis we will. But why can't we fix it

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Replies to "So I was diagnosed with fibrillary glomerulonephritis in Jan. I had a check up today hoping..."

Hi @jennifer208, I moved your latest message to the original discussion you started on glomerulonephritis so that you can stay connected with the members who know your story. Jennifer, did the doctors at Mayo Clinic explain what a bone marrow biopsy might be able to indicate? Are the Mayo doctors coordinating with your local doctor?

Jennifer, I endured Glomerulonephritis for four year and in 2021 I had a kidney transplant (my sister was my donor) initially drs in NYC wanted to give me Rutuxin,sp? and I passed. I just was very disciplined with my diet. and took medication from my other doctor not steroids. . I asked my nephrologist how in the world did I end up with this condition? HE wasn't about to go into length explaining, One interesting thing he told me that one possible way that the filters in a kidney are damaged is due to infection which we had in our body that settle in kidneys and no longer work filtering out waste product from our kidneys. IT wasn't painful at all yet I didn't become very tired at the end of the day and needed to sleep. I didn't have that get up and lets go energy. Mind sometimes got foggy and I would become forgetful.. Couldn't concentrate some was due to worry wondering when the ball would fall and my kidney would fail totally..I just got very and didn't have the energy I was used to having, One of the last advances is stem cells is now at sever major hospitals. Ask. your Mayo drs about the latest research with stems cells from the donor preferable a sister or mother which can be used before a kidney transplant take place. Best of luck .