Functional dyspepsia

Posted by josephkahn @josephkahn, May 8, 2017

Hi everyone,
Really happy to be joining this community!

In 2013 I started experiencing symptoms of chronic dyspepsia as well as early fullness. Constantly feel discomfort in stomach, nausea and occasional constipation. The main problem is early fullness: I feel totally sick after a couple bites or sips of anything. In the last couple years I've lost a bunch of weight.

Four different medical teams have tried to figure out what's wrong. Two CT scans, an MRI, 4 endoscopies, a colonoscopy, multiple pathology tests, a gastric emptying study, and four upper-GI series. I've not undergone any procedures or been put on medication for more than a week or two at a time.

At the moment two different medical teams are arguing about what's wrong with me. One believes based on an MRI and CT scan that there is an outflow obstruction after the second part of my duodenum, which they think is annular pancreas or some close variant. They believe that by bypassing my duodenum they will relieve me of the symptoms. The other team (looking at the same images) thinks there isn't evidence to justify an operation and thinks the problem is functional. Both teams agree that the duodenum is slightly dilated, and there is some amount of narrowing after the second phase.

I don't know what to do since we've basically exhausted all of the different imaging and scope-based tests as far as I can tell.

If anyone has suffered from these symptoms before or been in a similar situation, I would greatly appreciate hearing your stories.

Thank you so much,

Joseph

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for darweshalassi @darweshalassi

Hello everyone , 2 years until now i have bad digestion a lot of sounds and voices inside my stomach to my throat like gurgles and burbs it wont stop some times i feel like a very small bubble growing untill it explode to a burb inside my throat , i went to Gi he told me its GERD , he put me on ppi `s and for 9 month i tried the whole ppi med`s .. nothing helped actually make it worse than before i stopped them , and also i have nausea it wont go away last GI told me to go to psychiatrist i dont know why but i did go .. and they put me on cipralex ( same as lexapro ) cuz i live in saudi arabia , actually it helped me with nausea part .. but stil the digestion is bad so much .. i tried a lot of things even i tried HCL insted of ppi but i still having this sounds and gurglesthe doctor said its dyspepsia functional .. but i really dont know what to doi did Endoscopy before in the report they told me i have hital hernia but can the haital hernia do all of that ? i still dont know ..can someone help me with that ? thanks!

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anyone ?

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Profile picture for darweshalassi @darweshalassi

Hello everyone , 2 years until now i have bad digestion a lot of sounds and voices inside my stomach to my throat like gurgles and burbs it wont stop some times i feel like a very small bubble growing untill it explode to a burb inside my throat , i went to Gi he told me its GERD , he put me on ppi `s and for 9 month i tried the whole ppi med`s .. nothing helped actually make it worse than before i stopped them , and also i have nausea it wont go away last GI told me to go to psychiatrist i dont know why but i did go .. and they put me on cipralex ( same as lexapro ) cuz i live in saudi arabia , actually it helped me with nausea part .. but stil the digestion is bad so much .. i tried a lot of things even i tried HCL insted of ppi but i still having this sounds and gurglesthe doctor said its dyspepsia functional .. but i really dont know what to doi did Endoscopy before in the report they told me i have hital hernia but can the haital hernia do all of that ? i still dont know ..can someone help me with that ? thanks!

Jump to this post

Hi, why not try food elimination to see if something specific is causing it. FODMAP is a list of a lot of foods that cause problems for people. It will take more work on your part to do it but the results would be worth it.

REPLY
Profile picture for darweshalassi @darweshalassi

Hello everyone , 2 years until now i have bad digestion a lot of sounds and voices inside my stomach to my throat like gurgles and burbs it wont stop some times i feel like a very small bubble growing untill it explode to a burb inside my throat , i went to Gi he told me its GERD , he put me on ppi `s and for 9 month i tried the whole ppi med`s .. nothing helped actually make it worse than before i stopped them , and also i have nausea it wont go away last GI told me to go to psychiatrist i dont know why but i did go .. and they put me on cipralex ( same as lexapro ) cuz i live in saudi arabia , actually it helped me with nausea part .. but stil the digestion is bad so much .. i tried a lot of things even i tried HCL insted of ppi but i still having this sounds and gurglesthe doctor said its dyspepsia functional .. but i really dont know what to doi did Endoscopy before in the report they told me i have hital hernia but can the haital hernia do all of that ? i still dont know ..can someone help me with that ? thanks!

Jump to this post

@darweshalassi You might ask to try a different PPI medication. Some did not work well with me. Hiatal hernias can cause a lot of acid. Usual treatment when the PPI does not work is a Nissen fundoplication .. but many fail. Mine did and a repair failed. A procedure called LINX procedure has worked well for many people. The best thing to do right now is to ask maybe for a different PPI and work on reducing symptoms by diet. Spicy foods.. acidic foods can make the acid worse. I used to eat nothing but plain white rice for a few days when I had bad acid episodes. My hiatal hernia caused so much problems I had to have a gastric bypass.

REPLY
Profile picture for darweshalassi @darweshalassi

Hello everyone , 2 years until now i have bad digestion a lot of sounds and voices inside my stomach to my throat like gurgles and burbs it wont stop some times i feel like a very small bubble growing untill it explode to a burb inside my throat , i went to Gi he told me its GERD , he put me on ppi `s and for 9 month i tried the whole ppi med`s .. nothing helped actually make it worse than before i stopped them , and also i have nausea it wont go away last GI told me to go to psychiatrist i dont know why but i did go .. and they put me on cipralex ( same as lexapro ) cuz i live in saudi arabia , actually it helped me with nausea part .. but stil the digestion is bad so much .. i tried a lot of things even i tried HCL insted of ppi but i still having this sounds and gurglesthe doctor said its dyspepsia functional .. but i really dont know what to doi did Endoscopy before in the report they told me i have hital hernia but can the haital hernia do all of that ? i still dont know ..can someone help me with that ? thanks!

Jump to this post

My Nissen failed....1 in 6 fail according to Mayo doc.. try eating small meals slowly, chew food really well. Try small quantity Snacks between meals. Take multi-vitamin, gas-x, no carbonated beverages... Ken

REPLY
Profile picture for darweshalassi @darweshalassi

Hello everyone , 2 years until now i have bad digestion a lot of sounds and voices inside my stomach to my throat like gurgles and burbs it wont stop some times i feel like a very small bubble growing untill it explode to a burb inside my throat , i went to Gi he told me its GERD , he put me on ppi `s and for 9 month i tried the whole ppi med`s .. nothing helped actually make it worse than before i stopped them , and also i have nausea it wont go away last GI told me to go to psychiatrist i dont know why but i did go .. and they put me on cipralex ( same as lexapro ) cuz i live in saudi arabia , actually it helped me with nausea part .. but stil the digestion is bad so much .. i tried a lot of things even i tried HCL insted of ppi but i still having this sounds and gurglesthe doctor said its dyspepsia functional .. but i really dont know what to doi did Endoscopy before in the report they told me i have hital hernia but can the haital hernia do all of that ? i still dont know ..can someone help me with that ? thanks!

Jump to this post

Replying to your questuon about a hiatal hernia causing all of your problems I would say most likely. I have a hiatal hernia and have also had the Nissen fundoplication done. Mine has held up well up until the last year and now I am back to having significant issues. I was just diagnosed with Barretts and I'm not convinced that the Nissen wrap slid or is failing. It is causing breathing problems that they say are separate from my asthma. Anyway, my suggestion is to find a surgeon who has high success rate with working on fixing hernias. God bless.

REPLY
Profile picture for darweshalassi @darweshalassi

Hello everyone , 2 years until now i have bad digestion a lot of sounds and voices inside my stomach to my throat like gurgles and burbs it wont stop some times i feel like a very small bubble growing untill it explode to a burb inside my throat , i went to Gi he told me its GERD , he put me on ppi `s and for 9 month i tried the whole ppi med`s .. nothing helped actually make it worse than before i stopped them , and also i have nausea it wont go away last GI told me to go to psychiatrist i dont know why but i did go .. and they put me on cipralex ( same as lexapro ) cuz i live in saudi arabia , actually it helped me with nausea part .. but stil the digestion is bad so much .. i tried a lot of things even i tried HCL insted of ppi but i still having this sounds and gurglesthe doctor said its dyspepsia functional .. but i really dont know what to doi did Endoscopy before in the report they told me i have hital hernia but can the haital hernia do all of that ? i still dont know ..can someone help me with that ? thanks!

Jump to this post

I was diagnosed a year ago. I take a med that is called FDguard. It is for Functional Dispepcia. I eat small meals,and am on a small antidepressant. A lot of us also take propanol to relax the esophagus. Some days are better in fact you will get more days better than not. Good luck .

REPLY
Profile picture for jeanette527 @jeanette527

Hi, why not try food elimination to see if something specific is causing it. FODMAP is a list of a lot of foods that cause problems for people. It will take more work on your part to do it but the results would be worth it.

Jump to this post

i tried that ;( and this is happening to me even if i didnt eat anything
thank you anyway 😉

REPLY
Profile picture for ZeeGee @fourof5zs

@darweshalassi You might ask to try a different PPI medication. Some did not work well with me. Hiatal hernias can cause a lot of acid. Usual treatment when the PPI does not work is a Nissen fundoplication .. but many fail. Mine did and a repair failed. A procedure called LINX procedure has worked well for many people. The best thing to do right now is to ask maybe for a different PPI and work on reducing symptoms by diet. Spicy foods.. acidic foods can make the acid worse. I used to eat nothing but plain white rice for a few days when I had bad acid episodes. My hiatal hernia caused so much problems I had to have a gastric bypass.

Jump to this post

actually i tried all the PPI`s im going to the DR this week to ask him about the LINX and i hope this will work for me

thank you veryMuch !!

REPLY
Profile picture for ken82 @ken82

My Nissen failed....1 in 6 fail according to Mayo doc.. try eating small meals slowly, chew food really well. Try small quantity Snacks between meals. Take multi-vitamin, gas-x, no carbonated beverages... Ken

Jump to this post

oh sorry to hear that ;( ..
thank you KEN ,, will do

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Profile picture for greff @greff

Replying to your questuon about a hiatal hernia causing all of your problems I would say most likely. I have a hiatal hernia and have also had the Nissen fundoplication done. Mine has held up well up until the last year and now I am back to having significant issues. I was just diagnosed with Barretts and I'm not convinced that the Nissen wrap slid or is failing. It is causing breathing problems that they say are separate from my asthma. Anyway, my suggestion is to find a surgeon who has high success rate with working on fixing hernias. God bless.

Jump to this post

sorry to hear that Greff ;( i hope u will be fine soon ..
and sure i`ll try to find a good doctor !!!

thanks 😉

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