← Return to My dentist suggest delaying crown until definitive diagnosis of MAC?

Comment receiving replies

@crepass Hello –
Sorry I missed this post. Do you have any more information on your infection from your pulmonologist? There are varying ways to get a sputum sample. When first diagnosed, I was coughing 24/7 and they just used what I coughed up in the AM for 3 days in a row, delivered to their lab. Later when I had trouble coughing up sufficient sputum for a culture, my doc had me neb with 10% saline in the office – I coughed like crazy & they got enough to sample. My daughter's doc was doing a bronchoscopy on her for another reason, and got a sample during the test (hers was negative, thankfully.)
Maybe the pulmonologist meant that there is some evidence of MAC infection on the CT, but not a lot – as MAC progresses, if not treated, some people begin to show more evidence of infection – pockets or shadows, I've had docs describe them various ways.
The sputum sample, cultured for 6-8 weeks, tells the doc exactly what strain(s) you have. The "bugs" are then subjected to sensitivity testing to see which antibiotics they respond to. This is very important, because various strains respond to different antibiotics. I have M. avium intracellulare and M. gordonae, both of which respond to a combination known as the "Big 3" here – azithromycin, rifampin and ethambutol. I was treated for 18 months until my symptoms and the evidence of infection on the CT resolved. My sputum still tests positive, so I use 7% saline & a bronchdilator to try to keep it down. If I get symptoms again, I may need to restart those antibiotics or different ones (praying not!) Other people with different strains may be treated with other drugs, but almost all must be treated with more than one antibiotic, either in combination or alternating, because NTM (non-tubercular mycobacteria) are notorious for developing drug resistance.
If you have done much reading, here or elsewhere, you are aware that MAC is very slow-growing, needs to be treated for a long time to eradicate it, and occurs just about everywhere in the environment, so reinfection happens if you have bronchiectasis or other risk factors.
One thing you can assure your dentist is that MAC is not contagious to him, his staff, or his other patients.
Good luck with your treatment. Keep us informed & feel free to ask questions.

Jump to this post

Replies to "@crepass Hello - Sorry I missed this post. Do you have any more information on your..."

Hi Sue, This has been a rough year with COVID and work. I am a nurse in a clinic. Stayed healthy all year doing airway clearance and 3%saline nebs. My ID doctor went on maternity leave. The ct scans are unchanged and sputum still shows Mac. So my choice to see if I could kick it was all for naught. This month I got a virus which landed in an exacerbation. Just sent in my sputum sample to see what’s up. Listening to podcast NTM talk. Made me wonder whether I have gerd or aspirations of some kind, that are keeping me sick. I’m going to practice a healthy gerd regimen until my doctor comes back and hope that the augmentin I am on (given in ER), will calm cough and sputum. Working hard to manage this.