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Severe spinal stenosis: Would you do surgery?

Spine Health | Last Active: Feb 22, 2023 | Replies (186)

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@colleenyoung

Hi @lotsofpain, you'll notice that I moved your message to this existing discussion about spinal stenosis. I did this so you can connect with @jenniferhunter @collierga @bernese53 and others who have experience dealing with this issue.

This is another good discussion to review:
- What helps spinal stenosis besides surgery? https://connect.mayoclinic.org/discussion/i-came-in-here-because-i-suffer-from-spinal-stenosis/

What treatment or therapy did your doctor suggest? Was it suggested that treating the spinal stenosis would mean you wouldn't have to have hip surgery?

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Replies to "Hi @lotsofpain, you'll notice that I moved your message to this existing discussion about spinal stenosis...."

Thank you the doctor I saw is a hip surgeon specialist and the hip replacement will go ahead but he is made the point that that it will not solve all the problems so so he has referred me back to my GP for her to do a referral to a spinal specialist who will decide what sort of action to take I already had an injection in my spine but it did no good and arguably made things worse

Hello. 😀 The term spinal stenosis was never mentioned to me. Originally back in 1982 I had Spondylolisthesis. That is what the Harrington rods were for. Then in 1993, it was determined that the rods were useless and by this time I had advanced scoliosis, osteoarthritis, osteoporosis, and Spondy in another location - that is when the 6 screws were put in. Through genetic testing, I was found to also have Ehler's-Danlos Syndrome. That involves collagen. (To make a dreadfully long story short, all tissue in my body is too lax - muscles, tendons, ligaments, even skin. I can intentionally dislocate shoulders, wrists, fingers, knees, ankles, toes, and can turn my neck to see directly behind me. I could probably fold myself into a box.) 3 years ago I had a total right hip replacement. I don't really know the cause of that, but my hip slipped & slid all the time. It was suggested that the combo of EDS and severe scoliosis (side-to-side AND front-to-back) was the culprit.

I have had many injections in my spine, none of them helped. I was told one should last 6 months, another should help for a year, but none of these helped. Now I have the SCS device implanted and tho it was so recent, I know it will block the pain because the trial worked beautifully. Probably reduced pain by 75-80%. We are doing small adjustments on my implant and I'm feeling better.