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DiscussionSevere spinal stenosis: Would you do surgery?
Spine Health | Last Active: Apr 13 12:45am | Replies (210)Comment receiving replies
Replies to "@collierga I understand your concerns. You will get different opinions from different surgeons, but understand that..."
I had neck surgery for cervical stenosis. At the time they told me it was so bad that is I fell I could be paralyzed. So they rushed me into surgery. I have had nothing but pain ever since. I wish I had looked into other options 1st. Then almost 2 yrs ago I had a lumbar burst fracture of my L4 they wanted to rush me into surgery right away. I said no I want to treat it with p t first. Wish I could have gotten into mayo for another opion. But even though I have a mayo number they would not see me.
Hi Jennifer, I read your story on the link provided. Girl, you are a fantastic artist!!!! I'm so glad you are fixed and can paint again!!! I'm so happy for you that you found the right surgeon and that the outcome from the surgeries has given you your quality of life back. Yay! @collierga, so many of us here have spinal stenosis somewhere and other pathologies in our spines. I have every symptom of equina cauda syndrome: https://duckduckgo.com/ so my neurologist sent me for an MRI which showed "severe canal stenosis" on my lumbar region. I've already had three back surgeries, the last being a fusion of L4/L5. Now my L3 is causing anterior thigh pain/throb/weakness. I've already lost some bladder and bowel function and legs are the last to go in these types of situations. I'm very concerned. We saw two neurosurgeons who both said they could remove some ligaments, etc. to free up some space. Currently, they can still see some fluid around my spinal nerves so I'm not an emergent situation. However, I had had extensive testing, urodynamics and anal/rectal manometry which I failed both. So I do have a nerve disconnect. The neurosurgeons keep telling me that I am very high risk. I have quite a few diseases and am on two immunosuppressant medications. I used to be on three until the 20+ years of Plaquenil caused some tissue death in my retina. My fear is losing my ability to walk. I do not want surgery now, b/c my husband couldn't be there w/ me. I am being followed every 3 months by my spine doctor and neurologist. An appointment with each, every 3 months. We'll see. I will keep you both in my heart, mind and prayers. Warmest wishes, Sunnyflower
@jenniferhunter
Hi Jennifer
Thanks for sharing your story and expertise. I think you took a great approach by looking into surgeons. I have AKU. It is a rare genetic disease that causes early spinal degeneration in the thoracic and lumbar areas and in major joints. I have had both shoulders both hips, and both knees replaced. I have had five back surgeries with the last being a correction of scoliosis with fusion from T 11 to S1. I also have a spinal stimulator implanted in my lower thoracic spine, which has not helped me. I have stenosis at T 10 and 11, which causes severe pain the longer I am standing I cannot walk very far without my spine hurting me or sitting on my feet for very long without much pain. I do press on because I like To do things and accomplish things. I am on a combination of tramadol and hydrocodone, which give me some relief I would love to know if someone could do surgery for this spinal stenosis, which is causing my pain. WhichMayo Clinic did you go to? I am interested in getting some expert opinions on my situation. I know that thoracic spine surgery is unusual and can have complications. I have been dealing with this spine pain for so long and am willing to do another surgery if it could relieve my pain. I just want to make sure that I am with a surgeon who takes his time and it’s done this type of surgery many times it sounds like Mayo Clinic would be a good place to start. I would appreciate your opinion of this.
Thanks,
Dawn Horne
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Thank you for your response/opinion
You gave me a couple things I have not thought of as I make my decision. The hard part is I have no pain nor loss of any function.
Everyone just tells me don't fall. When I read the complications of surgery it scares me. I am very familiar with Mayo Clinic as have had my daughter there, unfortunately my insurance won't cover going to Mayo Clinic.
Thanks again